were back again.......

We are back again. Chey had another surgery and wait for it........ was a sucsess yes!!!!! Everything went right, when we finally got back into preop she and tristan did wonderful she went back with no problem and came out probably 45 min later. She was more alert waking up and not in as much pain. She never made it to upstairs they sent her home after recovery. The amazing thing we left and there was still light outside. So now instead of 2 tubes she has a button (newest) for her feeding tube and then the dialysis.
We have gotten in all the paper work for her transplant we are just waiting on the doctors to review it and let us know she has been put on the list. On the 22nd both Chey and T go to the eye specialist and then to the kidney doctor. Chey to the kidney for her monthly check up with all docs and T is to find out how his kidneys are functioning. Cause we never knew when Cheys started going down hill.
Both kids are doing wonderful in therapy T is standing more at home with support and at therapy and his therapist is working on getting him his own gait trainer. (I believe there is a pic of him on the blog in a pink one) and it will be his to keep. Hes not as strong or walking for a walker like cheys. Cheyenne has been walking everywhere in her walker, stores shopping doc appts. Its wonderful to see her doing it and she is starting to explore more with it. She is loving her preschool and I will be starting to work with her more at home on it with T as well. Should be fun I'll keep you posted. I will post pics as soon as she will let me get a pic of her new button. ttyl