Chey had a rough day for testing

Today was cheys big day in portland for all her testing we went from blood work they had started out with 20 vials that they needed to get and got it down to 12. so that was the only good part they poked her 4 times and only filled 5 out of the 12. then we went from there to xray this was the only test out of the hole day she didnt scream in. they took a pic of her chest and hand then she had a ulta sound of her abdomen done from there went and had a echo and a ekg. Then we went and got the rest of her blood work done so after all the blood they took from her she was poked 8-9 times and she was very wore out from all the testing and screaming. the only test we didnt get done was the urine and that was because both times they put the bag on her upside down so we are hoping that we can go in monday and they can do that then send it back to portland. The day before it was just jeff and I until the 2nd to the last appt. so we sat through a 3 hour class that tells us everything that we are to expect out of a transplant and its better than being hooked up to a machine all night but I just wanted to cry. she has to take pills for the rest of her life and watch out to not get sick stay out of the sun cause cancer is worse after transplant cause of all the pills your on. the first year of pills we were told were $30,000 or more. Plus even getting a cold or any kind of infection is a risk of losing her new kidney once she gets one. so besides being disabled the poor child will never live a normal life. i just want to cry. during class you introduce your self and out of everyone and there family members that were there chey was the ONLY child. so that was even harded. I believe right now in the state of Idaho chey is the only child that is in kidney failure and on dialysis. well that was our trip to portland in a nutshell we will get a letter hopefully in 2 wks letting us know about how her trasplant eval went.